Genomic profile information systems and methods
First Claim
1. A genomic profile information system accessible over a communications network, the genomic profile information system comprising:
- data for a plurality of participants indicating genomic profile information of the participants; and
a software system comprising privacy settings for at least one of the participants and controlling access by others over the communications network to genomic profile information of the participant, wherein the participant controls the privacy settings for the participant, and the privacy settings for the participant can be configured by the participant over the communications network.
1 Assignment
0 Petitions
Accused Products
Abstract
A variety of methods and systems related to genomic profile information and related participants are described. Participants can be encouraged to allow access to their genomic profile information in a variety of ways. A peer-to-peer genomic profile information network can be implemented. A collection of genomic profile information for a large number of participants can be built, and anonymity of the participants can be maintained. Participants can maintain custodial control over their genomic profile information. Comparative tools and groups can help participants identify and communicate with other participants having similar information.
134 Citations
94 Claims
-
1. A genomic profile information system accessible over a communications network, the genomic profile information system comprising:
-
data for a plurality of participants indicating genomic profile information of the participants; and
a software system comprising privacy settings for at least one of the participants and controlling access by others over the communications network to genomic profile information of the participant, wherein the participant controls the privacy settings for the participant, and the privacy settings for the participant can be configured by the participant over the communications network. - View Dependent Claims (2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14, 15, 16, 17, 18, 19, 20, 21, 22, 23, 24, 25, 26, 27, 28, 29, 30, 31, 32)
-
-
33. A method comprising:
-
registering an individual as a participant in a genomic profile information center;
collecting personal genomic profile data of the participant;
adding the participant to a genomic profile information database; and
granting the participant custodial control over the participant'"'"'s genomic profile information. - View Dependent Claims (34, 35, 36, 37, 38, 39, 40)
-
-
41. A method comprising:
-
analyzing a biological sample collected from a patient to generate a genomic profile for the patient;
incorporating the genomic profile for the patient into a genomic profile information collection comprising genomic profile information for a plurality of other patients; and
compensating the patient by providing at least some level of access to the genomic profile information collection. - View Dependent Claims (42, 43, 44, 45, 47, 50)
-
-
46. A method comprising:
-
registering an individual as a participant in a genomic profile information network;
collecting genomic profile information from the participant, wherein the genomic profile information from the participant comprises gene expression information for one or more genes based on a biological sample taken from the participant;
adding the genomic profile information from the participant to a collection of data comprising genomic profile information from other participants, wherein the genomic profile information from the other participants comprises gene expression information for the one or more genes based on biological samples taken from the other participants;
comparing the genomic profile information of the participant with that from the other participants to generate comparison results indicating closeness between the participant'"'"'s genomic profile information and genomic profile information of one or more of the other participants; and
presenting the genomic profile information of the one or more other participants, wherein identities of the one or more other participants remain anonymous.
-
-
48. A genomic profile information center granting patients control over their personal genomic profiles.
-
49. A method of operating a genomic profile information center, wherein patients are granted control over their personal genomic profiles.
-
51. A method of providing a genomic profile information database, wherein participants exercise control over their genomic profile information.
-
52. A method comprising:
compensating a person in exchange for contributing information to a genomic profile information database. - View Dependent Claims (53, 54)
-
55. A method comprising:
-
collecting a biological sample from a person;
performing analysis on the sample to generate personal genomic profile for the person;
pooling the personal genomic profile with personal genomic profiles from other people into a collection of anonymous personal genomic profiles;
selling the collection of anonymous pooled personal genomic profiles to a requesting entity for payment; and
as a result of the sale, compensating the person via the payment. - View Dependent Claims (60, 61, 62)
-
-
56. A method comprising:
-
directing a person to supply a biological sample from the person'"'"'s body to a laboratory;
receiving an analysis of the biological sample from the laboratory and incorporating the analysis into a personal genomic profile for the person;
pooling the personal genomic profile with personal genomic profiles from other people into a collection of anonymous personal genomic profiles;
selling the collection of anonymous pooled personal genomic profiles to a requesting entity for payment; and
as a result of the sale, compensating the person via the payment.
-
-
57. A method for motivating a person to contribute information to a genomic profile information database, the method comprising:
compensating the person in exchange for contributing information to the genomic profile information database.
-
58. A method for motivating a participant to contribute to a genomic profile information database, the method comprising:
-
at the direction of the participant, receiving personal genomic profile information of the participant for addition to the database; and
providing monetary compensation to the participant in exchange for receiving the personal genomic profile information of the participant.
-
-
59. A method for motivating a participant to contribute to a genomic profile information database, the method comprising:
-
receiving personal genomic profile information of the participant for addition to the database;
adding the personal genomic profile information to the database; and
providing comparative genomic analysis to the participant in exchange for receiving the personal genomic profile information of the participant, wherein the comparative genomic analysis comprises comparing the personal genomic profile information to personal genomic profile information for other participants in the database.
-
-
63. A method comprising:
-
storing a personal genomic profile for a participant in a database;
designating the participant as a member of a group; and
providing the participant with access to group functions and information. - View Dependent Claims (64, 65, 66, 67, 69)
-
-
68. A method for presenting analysis of a set of personal genomic profiles, the method comprising:
-
designating a set of personal genomic profiles;
identifying differences and similarities in the set of personal genomic profiles; and
displaying the differences and similarities in the set of personal genomic profiles.
-
-
70. A method for building a genomic profile information database, the method comprising:
-
responsive to the request of an individual human being, adding a personal genomic profile for the individual human being to the database;
receiving a request to provide a collection of information comprising the personal genomic profile to a requester in exchange for payment;
responsive to the request to provide a collection of information comprising the personal genomic profile, providing an anonymous version of the personal genomic profile from the database to the requester in exchange for payment; and
based on having provided the anonymous personal genomic profile to the requestor, compensating the individual human being for having added the personal genomic profile via the payment.
-
-
71. A method for providing a service to a remote customer, the method comprising:
-
obtaining a personal genomic profile of the customer;
pooling the profile with other profiles;
selling the pool; and
passing compensation back to the customer.
-
-
72. A method for providing a service to a remote customer, the method comprising:
-
obtaining a personal genomic profile of the customer;
pooling the profile with other profiles;
over a computer network connection, providing the customer with tools to compare the profile with other profiles in the pool.
-
-
73. A method of providing a personal genomic information service to a participant, the method comprising:
-
obtaining information and a biological sample from the participant to generate a personal genomic profile; and
granting the participant the ability to perform custodial functions on the profile. - View Dependent Claims (74, 75, 76)
-
-
77. A method comprising:
signing a contract over the Internet establishing ownership of personal genomic profile information.
-
78. A method comprising:
accepting a contract signature over the Internet establishing ownership of personal genomic profile information.
-
79. A method of acquiring personal genomic profile information for use in a research study, the method comprising:
offering payment for a collection of anonymous genomic profiles
-
80. A method of selling personal genomic profile information, the method comprising:
offering an anonymous version of one'"'"'s personal genomic profile in exchange for payment.
-
81. A method of selling personal genomic profile information, the method comprising:
-
providing an anonymous version of one'"'"'s personal genomic profile to be pooled with the personal genomic profile of others;
authorizing via a computer user interface over a communications network a sale of the pooled personal genomic profile in exchange for payment; and
accepting a portion of the payment.
-
-
82. A method of selling personal genomic profile information, the method comprising:
in exchange for payment, contributing an anonymous version of one'"'"'s personal genomic profile to a pool to be sold in exchange for payment.
-
83. A method of providing a genomic profile information clearinghouse, the method comprising:
-
establishing a trust relationship with an individual;
at the direction of the individual, accepting personal genomic profile information about the individual;
conducting a sale of the personal genomic profile information about the individual to a third party; and
paying the individual from proceeds of the sale.
-
-
84. A method of providing a genomic profile information clearinghouse, the method comprising:
-
receiving personal genomic profile information from an individual;
providing the genomic profile information to a third party in exchange for payment; and
providing a portion of the payment to the individual.
-
-
85. A method of providing a genomic profile information clearinghouse, the method comprising:
-
receiving personal genomic profile information from an individual;
combining the personal genomic profile information into a pool of genomic profile information;
providing the pool to a third party in exchange for payment; and
providing a portion of the payment to the individual.
-
-
86. A method of presenting information from a genomic profile information database having a plurality of entries for a plurality of persons, wherein the entries indicate traits of the persons, the method comprising:
-
finding persons having common traits in the database;
displaying a graphical representation of the persons having common traits, wherein identities of the plurality of persons remains anonymous.
-
-
87. A computer-readable medium having computer-executable instructions for performing the following:
-
receiving personal genomic profile information for an individual;
adding the personal genomic profile information to a database;
retrieving a pool of information from the database;
receiving an indication that the pool of information has been sold; and
responsive to receiving the indication, recording compensation data indicating the individual is to be compensated. - View Dependent Claims (88, 89, 90, 91, 92)
-
-
93. A genomic profile information center comprising:
-
a collection of personal genomic profiles for a plurality of participants; and
tools for comparing the personal genomic profiles with a genomic profile of a particular participant.
-
-
94. A genomic profile information center comprising:
-
means for collecting personal genomic profiles from a plurality of participants;
means for pooling the personal genomic profiles into a collection of personal genomic profiles; and
means for recording compensation due to a participant as a result of having sold the collection to a requesting entity.
-
Specification